Maylee “Moo” Brielle Ball (May 28, 2015-August 08, 2022) passed surrounded by her loving family after a long, courageous battle with SAVI. From birth, Maylee was attached to oxygen, followed by a feeding tube and lines. Life was not fair to her, but you would never know that.
She carried herself with courage, sass, tremendous spunk, and the most amazing smile. She brightened every room and every soul. She was the light in the scary, dim world.
Maylee went through hundreds of hospital stays, procedures, and surgeries, but she never complained. She never let the bad phase her beautiful soul. She had the biggest, roundest brown eyes with the softest, kindest heart, though she was never afraid to stand up for herself. She was definitely in charge and made sure we all knew.
She had so many family members and friends that were completely wrapped around her finger. In fact, they basically never told her no, and if they did, it was followed by a pinky promise, locked and sealed with a kiss for next time. If she requested a sleepover, food, a game of Roblox, or even a massage, her wish was granted. Her fantastic doctor even participated in her games of Roblox, which always made her day.
Her bellowing laugh was the best sound in the world and never failed to make you smile. Her favorite thing to do was play Roblox or make fun of you for not playing as well as her.
She had many best friends (Momma, Nana, Mimi, Poppy, Aunty Pami, Darragh, Riane, Kaley, Kassidy, JPablo, Uncle Keaton, Noah, Luke, Zachy, Jaxy, Red, Kaliza, Macin, Cliry, Parker, Rachel, Daxon “her boyfriend”, and her very best sister Lakey). Maylee and Lakelynn were only twenty months apart, which meant she forever had a best friend right from the start. She even got a best friend pup, Loki, for a service dog.
Maylee loved petting stingrays, aquariums, Silverwood, Roblox, waterslides, hot tubs (she even got one from Make-A-Wish), music, the hulk “because I’m strong like him”, unicorns, mermaids, Youtube, tumbling (she had the best cartwheels ever), and family nights.
Maylee had the bubbliest personality, fiercest roid rage, and was the bravest, strongest girl I’ve ever known. Before her passing, she started struggling being tied to cords, feeling alone being the only child on oxygen, and became really winded even walking a couple of feet. We were blessed with Maylee from the beginning and feel at peace knowing she no longer feels pain, fatigue, or loneliness. She can now breathe easy! There will never be words to describe how much we miss her, and nothing will ever fill this void.
We know she was greeted into heaven by her beloved and late Great Grandma Nor Nor, whom she shared oxygen with until her passing, Papa Bob, Dan, Earl, and Steve, and the amazing Alex Thatcher.
Maylee is survived by her mother, Kylah Ball, Sister, Lakelynn Ball, numerous aunts, uncles, cousins, grandparents, and her Godmother Riane. She will be forever loved, missed, and cherished.
A celebration of her life will be held at 12pm on Sunday, August 14, 2022, at the Maroon Activity Center (MAC), 550 Mercury St., Butte, MT, 59701 (access through Continental Drive only). A visitation will be held at the MAC one hour prior to the service, beginning at 11am.
Memorials in honor of Maylee are suggested to her family, Axelson Funeral Home to offset service expenses, or the three children’s hospitals that cared so wonderfully for her (NIH in Maryland, Seattle Children’s, or Children’s Colorado). The family would also like to give thanks to all individuals that have helped care for Maylee during her seven short years of life. We are forever grateful.
With her selfless generosity, she allowed her lungs to go to science in hopes of curing other children and saving other families from this unbearable heartbreak. *Lungs went to Seattle Children’s & NIH.
Please visit below to offer the family a condolence or to share a memory of Maylee.